Hugging Face与Sagebio发起罕见病黑客松，Anthropic与AWS提供5万美元奖金

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• Hugging Face与Sagebio发起罕见病黑客松，Anthropic与AWS提供5万美元奖金

  abidlabs · 主条目

  Georgia Channing称，Hugging Face与Sagebio今日发起"Rare Disease, Real Kid"黑客松，Anthropic与AWS提供5万美元奖金。该活动将开放一名罕见病儿童的基因组与临床数据，邀请社区寻找其病因及目前获批的可能有效药物。

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  RT Georgia Channing There is a child with a rare disease who is currently suffering and struggling to manage his symptoms. Rare as this is, you can directly help him. Today we are launching the "Rare Disease, Real Kid" Hackathon, and there are $50,000 in prizes from @AnthropicAI and @awscloud. We (@huggingface & @Sagebio) are helping this child open his genome and clinical data to the community, so that we can find what's caused his disease and what currently-approved drugs could help him. I doubt I need to motivate this much further or explain how rare it is for a family to share their child's genome and clinical data, but if you're not sure, consider this: Until very recently, it wasn't feasible for patients like this to get treatment because their disease was so rare that the economics could never justify the investment. Now, as we've seen, people with rare diseases are starting to be able to find the answers themselves (with the help of AI tools, cheaper sequencing, etc). This kid is not able to do that for himself and neither are his parents, so we're asking you for help. Both for this kid and to prove that it's possible for everyone else suffering from a rare disease. More details in 🧵. https://sagebio-rare-disease-real-kid-mva-hackathon-2026.hf.space/

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